Posted by on March 23, 19100 at 07:45:36:
In Reply to: Getting VERY Frustrated posted by Jennifer on March 22, 19100 at 09:23:46:
You are right on target! I give many talks to physicians and patients regarding PCOS to try to raise awareness. I find patients are often more sophisticated than their physicians regarding this disease. Reproductive endocrinologists are certainly, however, beginning to pay PCOS more attention. As for 10 cycles of Clomiphene, that is too much. If a patient needs that much Clomiphene, they should have been switched to something different and more effective earlier on. Clomid makes many women feel sick. Thanks for your comments.
: I have been reading posts on several PCOS message boards and growing increasingly frustrated. I was lucky enough to find a good doctor in my area who is very knowledgeable about PCOS and is treating me with Metformin. I went to see this doctor, a reproductive endocrinologist, after my OB/GYN insisted that the only first step to helping me conceive was to give me Clomid. I have terrible side effects from Clomid, both physical and emotional. I have also learned that Clomid does NOT usually work with PCOS women, and that when it does result in a pregnancy, that 20% miscarry - YET - so many women are given this drug and told it's the only thing for them. I have read dozens of posts from desperate women who have gone through up to 10 cycles of high doses of Clomid, only to have no result or to be heartbroken when the result is a miscarriage.
: Sorry for the rant, I'm just feeling so awful about this condition and feeling like there is nothing I can do to educate doctors around the country about this. I have met women who have actually walked into their doctor's offices with stacks of articles about the insulin connection and the doctors had no idea prior to that about the connection. Patients should not have to educate their doctors, it should be the other way around, shouldn't it?
: Jennifer